Harry had just turned 3 years old when he was diagnosed with Leukaemia. Just a year before, his mother Rebecca had been diagnosed with a rare cancer herself. She had just come to the end of her treatment plan and she was looking forward to finally heading back to work after having to take a long break to recover. She thought her family's battle with cancer was over, so the horror of Harry’s diagnosis was incredibly hard to take.
“I was incredibly shocked but also angry and frustrated. I had just been through cancer myself. It seemed incredibly unfair that it was now happening to Harry who was only 3-years old.”
“We just couldn’t believe what was happening and were overcome with an unbelievable sense of fear and worry.”
Harry was very quickly transferred to the Royal Marsden Hospital after being diagnosed initially at Kingston Hospital. They were in the Royal Marsden Hospital for two and a half weeks. They were then sent home with a treatment path. However, shortly after, Harry started to experience very bad stomach pains. A trip to Kingston Hospital confirmed he had picked up E. coli. It took him ten long and strenuous days in hospital to recover.
It was during this time that the nurses mentioned Momentum Children’s Charity to the Rebecca.
“My initial understanding was that Momentum Children’s Charity was a charity offering support groups only. The last thing I wanted was to talk to others about my situation, I just didn’t have the emotional room for it at that time. However, when I met Bianca it became very clear that there was something incredibly special about the charity and there was a lot more that they could offer.”
“Bianca came in, introduced herself and asked about my family. Freya, Harry’s 4-year old sister, was struggling with my absence and the next day Bianca turned up with two presents, one for Harry and a football for Freya. Bianca had remembered Freya’s love of football. It was the first time during this period that someone had thought about Freya. It made me feel very emotional, it’s a small thing that made a huge difference.”
As Harry’s treatment progressed we were able to offer the family use of our New Forest cabin and music therapy sessions.
“We wouldn’t have gone away if we hadn’t been offered a break at the New Forest cabin. Knowing it was provided by Momentum Children’s Charity made it immediately feel like a safe place. We really needed the break and space from hospital and routine. It was lovely seeing Harry and Freya playing together in a way they hadn’t been able to for 6 or so months.”
Harry really struggled emotionally during his treatment. He started to lack confidence without his mother there, often experiencing feelings of anger, whilst feeling frightened and upset. We arranged music therapy sessions, one batch during his treatment and a second batch of sessions when he started maintenance. The aim was to help him express his feelings and give him an opportunity to interact with someone else.
“Harry absolutely loved music therapy. He had a huge smile on his face during every session. It was wonderful to witness.”
Harry finally completed his treatment in April 2017 and is now doing brilliantly.
“Harry is now 7yrs old and looks like he’s 10... chemo certainly didn’t hold back Harry’s growth! He started junior school in September, plays football, tennis and swims.”
“The biggest thing for me, was having someone there who understood. I knew I could talk everything through with Bianca, I didn’t have to explain myself and she really helped normalise my situation.”
“They are just there for you. The support they offer doesn’t come and go. It’s unconditional and is never withdrawn. It’s bespoke to you and your family. I often think of the journey we have been on and all Momentum Children’s Charity has done for us."