There are many other organisations that can provide help, advice and information to parents in their areas of specialism. Some of these are listed below. Please speak to us first if you would like support and advice, and if we can’t help, we will be happy to point you in the right direction.
National Cancer Patient Information Programme
Information prescriptions have been developed by the NHS in England to improve information given to people with cancer and their families/ carers, and is guaranteed to be reliable and current.
0808 808 0000
Macmillan merged with Cancerbackup in 2008. Together they provide quality assured, up-to-date cancer information, written by specialists for patients, relatives and careers offering support all the way.
Children’s Cancer & Leukaemia Group
0116 252 5858
Research and provide information for patients and families, this includes Contact, a quarterly national magazine for families of children and young people with cancer. There aim is to cure even more children and to work hard to ensure a normal future - both physical and emotional - for survivors.
Sargent Cancer Care For Children
0300 330 0803
Support for young people with cancer and their families. They Offer counselling and advice from Sargent Social Workers, respite care, family breaks, adventure holidays and financial help. Information can be obtained from Macmillan, Clic Sargent for Children with Cancer
Leukaemia and Lymphoma Research
0207 405 0101
Provide expert information about all the different types of blood cancer including Hodgkin’s and related disorders for patients and their families. They can also put you in contact with other organisations for support.
020 7504 2200
Provide emotional support and information on a range of issues to individuals with lymphatic cancer their families, carers and friends.
Rays of Sunshine
Rays of Sunshine Children’s Charity was founded in 2003 to brighten the lives of children who are living with serious or life-limiting illnesses, between the ages of 3-18, across the United Kingdom.
The Neuroblastoma Society
020 8940 4353
Is a charity that funds research into Neuroblastoma and offers support to families of children who have been affected.
The Brain Tumor Charity
0808 800 0004
The Brain Tumor Charity is a caring charity committed to fighting brain tumours. They offer personalised support and are available online, on the phone, by email and through support groups. There scientific research improves the quality of life for brain tumour patients and identifies better treatments. They raise awareness to change things for the better, for everyone affected by a brain tumour.
The Family Fund
0190 462 1115
Provider grants to low-income families raising disabled and seriously ill children and young people. Their purpose is to help ease the additional pressures families face. They can help with essential items such as washing machines, fridges and clothing but can also consider grants for sensory toys, computers and much needed family breaks together.
Kids Cancer Charity
0179 248 0500
Aims to improve the quality of life for children and provide support to their families. They provide information about a national network of approved complementary therapies.
Teenage Cancer Trust
0207 612 0370
Mission is to raise funds, educate, and support teenagers fighting cancer. Provides information about health facts.
The Dancing Eye Support Syndrome Trust
0179 349 3131
Supplies information about Dancing Eye Syndrome and Neuroblastoma and offers support by putting families in touch with each other. There is a newsletter and an annual meeting.
UK Histiocytosis Family Support Association
Tel/fax: 01326 569 219
Supplies information to children and families with or affected by histiocytosis. They produce a newsletter, organises family days and put families in touch with one another.
Children with Cancer
A national charity dedicated to the fight against childhood cancer. The charity aims are to determine the causes, find cures and provide care for children with cancer.
Make a Wish
Aim to grant magical wishes to children and young people fighting life-threatening conditions.
020 7262 2881
Aims to brighten the lives of seriously and terminally ill children by granting their wishes and can provide hospital entertainment to help take their minds off the pain, fear and isolation of their illness.
Sending seriously ill children on their ‘Holiday of a Lifetime’ to the theme parks in central Florida.
Emily Ash Trust
Provide help and resources with the aim of improving the quality of life of children and young adults suffering with cancer and their families.
Beads of courage programme
The Programme is designed to support and strengthen children and families coping with serious illness. Through the program children tell their story using colourful beads as meaningful symbols of courage that commemorate milestones they have achieved along their unique treatment path.